On A Plate 2013: 359

Felpham

On A Plate 2013: 358

Chichester.

On A Plate 2013: 357

Brinsbury.

Felpham Gothic 2013

On A Plate 2013: 356

Felpham.

On A Plate 2013: 355

Felpham.

On A Plate 2013: 354

Chichester.

On a Plate 2013: 353

Chichester.

On A Plate 2013: 352

Brinsbury.

The Condition: Belated 1st. Anniversary Post.

Last Sunday I was merrily twanging away at the Wukulele Festive Ho-Ha, thinking that the 1st anniversary of my MS diagnosis was on the 17th (today in fact).

If I'd known it was actually the 15th (Wukulele day) I'd have enjoyed the jam even more than I did.

I feel lucky, really lucky.

The intervening year has been one of great personal change.

I won't go into tedious detail, but even changes that seemed disastrous at first have turned out to be a blessings in disguise.

So, how am I?

My lower legs are permanently slightly numb and 'fizzy'.

The cramp problem that plagued my waking has abated somewhat, but has found new places to appear, like my elbows.

My hands still cramp up regularly, thankfully playing the ukulele seems to relive it so I'm not sure it's MS related.

My hands seem to have developed an intermittent involuntary spasm.

It think it's similar to what golfers call 'yips'.

It's only a problem if I happen to have a hot drink in my hand, or when I'm at a critical point in an Airfix construction.

I've also noticed a gradual physical 'slowing-down'.

It's not as tangible as a fatigue episode, it's more feeling like I need bit of a sit down.

I don't get out of breath or anything, I just sort of run out of steam.

The more I tippy-tap-tap the more I realise that, for the moment, MS is really not such a big deal.

The only thing worth recording is...

Casual acquaintances, whom I don't see on a regular basis, all comment on how much weight I've lost since they last saw me.

I don't think Linda has noticed, but she has to look at me on a daily basis so she wouldn't necessarily be aware of my not taking up as much space as I used to.

Something a little more serious...

During interview, I neglected to mention my condition to my new employers, I thought it might jepodise my prospects.

This was fine while I was a rank and file cleaner, but I got promoted.

If I wanted to put a comedy spin on my dilemma I'd point out the application form asked if I had any serious medical conditions.

I ticked 'No'. 

I think MS is hilarious (with a hint of irony).

I think I'll keep my secret to myself.

Back to the jam...

Here's a picture of, although they probably don't know it, 3 people that have made a huge happy difference to my life.

Thanks chums!

Here's to being able to take a follow up shot next year.

On A Plate 2013: 351

Chichester.

On A Plate 2013: 350

Chichester.

Management Today! 02: 'ang on mate, the gold rubs off this crown!

I'm under no illusion about my current position.

I am here to keep the incumbents seat warm.

I am not to touch anything.

I am not to change anything.

I am neither to agree/disagree to any request made of me by College staff or the cleaning team.

I am expected to wear a shirt and tie.

I am expected to deal with all the admin paperwork.

I am expected to consult an adult if I detect myself having any independent thoughts relating to the delivery of cleaning services to the client.

You get the picture?

On my last cleaning shift I looked like this:

I know that look.

That's my 'worried man' look.

'But isn't this everything you wanted? Everything you worked for?'

Yeah, but..

I ended my first post anticipating tearing into the Nightshift Supervisor.

Errr, 

I visited the client's office to let them know my movements, telling them of my meeting with the Night Supervisor.

There was a collective tutting, raising of eyebrows, and vast exhalations of breath.

'Have you met 'im?'

No.

'course, he's not the one who should have got the job'.

Really?

'Y'know what they call him?'

No.

'Zombie'.

I began to feel my blood boiling, boiling, boiling.

I went back to the Manager's office and reported my recent conversation to the current encumbent.

He seemed genuinely surprised.

The whole thing bothered me to distraction.

The current encumbent and I arrived at the college at 18:30.

I am introduced to the Night Supervisor.

The Night Supervisor is a quite man who avoids eye contact by hanging his head.

He has some mobility issues.

He has a team of 14 to clean the whole campus overnight.

I now find out he is a Supervisor for only half of his 8hr shift, the other 4hrs he has to clean.

This is okay as long as everyone turns up for work or there are no other issues to deal with.

A rare circumstance.

He's a Northerner, like me.

He has a ready smile and a willingness to get things done.

I'm sorry I even contemplated tearing a strip off him.

That blood is still boiling.

The College is plastered with graffito-style slogans about achivement, inclusivity, support.

Fucking shiny happy people.

How dare the staff of an educational establishment in the 21st Century describe a valuable team player as a 'zombie'.

Wow! That relived the pressure.

I now look like this:

"All together now!"

'It takes a worried man to sing a worried song..."

On A Plate 2013: 349

Worthing.

On A Plate 2013: 348

Littlehampton.

On A Plate 2013: 347

St. Cats.

On A Plate 2013: 346

St. Cats.

On A Plate 2013: 345

Chichester.

345 on 11-12-13

On A Plate 2013: 344

Chichester.

On A Plate 2013: 343

Felpham.